Welcome!

Welcome to IreneDias.com!!!!

In May of 2007, my bride of 29+ years was diagnosed with Primary Amyloidosis and End Stage Renal Disease (ESRD).  This website has a fourfold purpose:

  • For family and friends to send well wishes and encouragement to Irene
  • For updates related to Irene’s treatment and progress
  • For greater exposure and understanding of Amyloid.  We hope that some day there will be a cure for this disease.
  • To provide an opportunity to tell the story of your own journey of faith and/or share a prayer request through our new discussion forum (site membership required to post)

Irene was hospitalized at Dominican Hospital on April 30, 2007, and two weeks later was transferred to UCSF. Following a stem cell transplant, Irene is now recovering at home after being discharged from UCSF on Friday, July 20, 2007. For an overview of Irene’s journey, click here.

The Dias FamilyIrene and I are eternally grateful for the outpouring of love and support expressed by people literally around the world.

I am inspired and humbled by Irene’s courage and sense of purpose surrounding this journey.  Her life exudes joy despite the tremendous challenge ahead.  She blesses every person that she comes in contact with.  Her smile continues to be contagious.  Simply put, she is amazing!

Our trust and faith in Jesus Christ as the loving infinite and eternal God, increases daily.  He deserves all the glory.

Dave Dias

Wednesday, July 01, 2009

Update From Dave

Most of our extended family (Dias side) were able to relax and enjoy a weekend at Pajaro Dunes where we stayed at a home with magnificent views of the Monterey Bay ....!!

On Saturday, several of us had a blast on 6 Zip Lines at The World’s only Redwood Canopy Tour.

Pajaro Dunes

Pajaro Dunes
JoAnna, Megan, Dan and Dave.  You can see a peek of Joe’s head behind Dave’s shoulder

Saturday evening was a great setting for a bonfire on the beach…!!!

Pajaro Dunes
Dad, Joel, Megan, Colleen behind Megan and Matt

Pajaro Dunes
Jocelyn, her friend Sean and Irene

Pajaro Dunes
JoAnna, Dad, Greg, Joel and Megan

.... and Sunday evening it was “chillin” at the beach house with the fireplace raging digesting a great meal ....!!!!

Pajaro Dunes
The “boys”… Dave, Matt, Dad Dan, Greg and Joel

Pajaro Dunes
and the girls, Irene, Colleen, Megan and Mom.

.... and a good time was had by all ....!!!!

Thanks for checking in ....!!!

Dave

Monday, June 22, 2009

A Defining Moment on Irene’s Journey of Faith!

Kidneys

Today, we received official word from UCSF that Irene is now on the ACTIVE Kidney Transplant Donor List.

  • Irene’s pathology report indicates that there is NO AMYLOID in her colon.  The small polyp discovered at the time of the colonscopy is benign
  • Irene’s common genetic markers make her transplant eligibility to be consider a “perfect” match
  • We can officially move forward with prospective donor conversations and donor packets
  • She can move forward with either a cadaver or living donor
  • The kidney transplant could be conducted on short notice; Irene is “on call” 24/7 which means that if UCSF calls she must be prepared to respond and travel immediately to UCSF.  We’re discussing contingency plans if I happen to be traveling when she gets the call
  • If, or WHEN she goes through the transplant process the likely hospitalization period is 5 days

Kidney

Kidney showing marked pallor of the cortex, contrasting to the darker areas of surviving medullary tissue indicating acute renal failure.


He is the Rock, his works are perfect, and all his ways are just. A faithful God who does no wrong, upright and just is he.
Deuteronomy 32:4

Irene returned home from dialysis this evening completely wrung out and nauseated .... but smiling and very encouraged by this report from UCSF.

Caminando con Fé

Dave

Sunday, June 21, 2009

Update From Dave

I hope that all of you dads enjoyed Father’s Day...!!!

I was able to chat with my dad this morning.  Our family is pretty scattered this weekend...we’re officially celebrating Father’s Day next weekend at a beach home in Pajaro Dunes, http://www.atthedunes.com/.

We were able to purchase a new car for Irene today...and hope that this one is averse to fender benders...!!!  smile smile smile

Irene’s energy was up and the nausea remained at a low roar for most of the day.  We enjoyed brunch in Monterey at Lattitudes Restaurant, Lover’s Point.

Thanks for caring,
Dave

Saturday, June 20, 2009

Update From Dave

9.45 p.m…

Irene’s energy has been really good today. 

Shirley Churchill spent 2+ hours with her this morning working on physiology techniques designed to improve body flow.  After lunch with Shirley and Ken we went to Monterey car shopping.

Irene’s nausea has remained at a low roar and it was tolerable all day.  For that we’re grateful.

Thanks for caring,
Dave

Friday, June 19, 2009

Update From Dave

You remember the Timex logo: “It takes a lickin’ and keeps on tickin’.”

Timex

Irene arrived home from dialysis this evening with SIGNIFICANT leg cramping.  She couldn’t walk normally .... and had great difficulty driving home.  Yikes!

She’s been to the chiropractor three times since the car accident on Wednesday.

We’re hoping that tomorrow is better and if her pattern continues, she represents the former Timex logo well where she “takes a lickin’ and keeps on tickin’.”

.... and she does it with a smile.

Thanks for caring,

Dave

Thursday, June 18, 2009

Update From Dave

2.30 a.m…

Yes, I am awake…and am having trouble sleeping…

So, I am meditating upon these verses….

Psalm 63:6

On my bed I remember you; I think of you through the watches of the night.

Psalm 119:148

My eyes stay open through the watches of the night, that I may meditate on your promises.

Lamentations 2:19a

Arise, cry out in the night, as the watches of the night begin; pour out your heart like water in the presence of the Lord. Lift up your hands to him for the lives of your children...

Irene is restless, tossing and turning…but sleeping…

Thanks for caring…and oh, by the way, did I report to you how she ended the traffic accident interaction with the young lady who RAMMED her yesterday?

Irene gave her a HUGE HUG and SMILE

Amazing…
Dave

Wednesday, June 17, 2009

Update From Dave

8.15 p.m.

“…just another day at the office…”

I awoke this morning at 3.45 am in a Newport Beach hotel following a productive day with clients.  As is my pattern, I checked my “Crackberry”…I mean, Blackberry, for any developments or urgent matters that needed immediate attention. 

The following was particularly compelling…At 1:02 am I had received an Instant Message from the CFO at Bethany University, http://www.bethany.edu.  The message was simply this:

“We had a fire on campus tonight.  The cafe burned - probably a total loss.  Call me in the morning?”

Click here for the full story: http://www.mercurynews.com/breakingnews/ci_12608031?source=email

After immediately responding to the Instant Message and emailing my technical team of this urgent development, I called Southwest Airlines and made flight changes which would allow my early morning arrival in San Jose. 

I met with the executive team at Bethany this morning and we discussed the multi-million dollar insurance claim and several mitigating strategies.

Later, I was back in the office when Irene called, alerting me that she had just been in a traffic accident…the second crash in six months…!!!  I immediately responded to her location and learned that as she was yielding for pedestrian traffic in a crosswalk, a young lady RAMMED the rear end of Irene’s vehicle. 

Irene has WHIPLASH and acute nausea from the impact.

Following the CHP report, I drove Irene to dialysis treatment in Watsonville then drove back to Bethany University in Scotts Valley to meet with the insurance adjustors. 

After that meeting I drove back to Watsonville, picked Irene up and took her to see our friend and chiropractor, Dr. Buford McCharen, http://www.aptoscorecare.com/.  Dr. McCharen caringly treated Irene for severe whiplash.  She will return tomorrow for another round.  She’s extremely soar and has limited shoulder and neck movement. 

It’s been a full day….as Irene recovers from dialysis treatment, the ongoing nausea, and the second rear end accident she’s experienced in six months.

“…just another day at the office….”

Thanks for caring,
Dave

Friday, June 12, 2009

Update From Dave

M A R A T H O N defined:

.... a test of endurance, a lengthy and difficult task, event, or activity

Pheidippides"

So, when Persia was dust, all cried, “To Acropolis!
Run, Pheidippides, one race more! the meed is thy due!
Athens is saved, thank Pan, go shout!” He flung down his shield
Ran like fire once more: and the space ‘twixt the fennel-field
And Athens was stubble again, a field which a fire runs through,
Till in he broke: “Rejoice, we conquer!” Like wine through clay,
Joy in his blood bursting his heart, - the bliss!

Wikipedia, Pheidippides

June 15, 2007 will be a date long remembered.  It’s hard to believe that we’re closing in on TWO YEARS since that rendezvous of time as we contemplate Irene’s SECOND Stem Cell Transplant Birthday.

http://www.irenedias.com/index.php/P855/

Irene endures today by the grace of God, answered prayer by a multitude of people, combined with the AMAZING UCSF Medical Team.

I’ve been slowly scrolling and reading through various pages of Irene’s website as I cogitate on the 2+ year journey…

http://www.irenedias.com/index.php/P660/
http://www.irenedias.com/index.php/P570/
http://www.irenedias.com/index.php/P480/
http://www.irenedias.com/index.php/P390/

Yes, we realize that she faithfully perseveres the following:

  • 3 days a week of dialysis treatment — Monday, Wednesday and Friday’s she leaves the house at 1 pm and returns near 6 pm
  • Inveterate fatigue — Irene wakes up on most days feeling depleted rather than rejuvenated because she doesn’t sleep well through the night; another classic symptom of kidney failure.
  • Unremitting nausea — Since June of 2007 and ever constant, it comes in random WAVES, oftentimes a tolerable 4-5 on a scale of 1-10 but on dialysis days the “tide” can rise to 10

.... and we remain hopeful for an eventual kidney transplant donor.

What is even more amazing is that Irene endures the journey with JOY.  For those of you who visit this website regularly, you personally witness her signature smile.  For those who have interaction with her, her optimistic countenance and poise is ever present.  This doesn’t mean she’s happy about her circumstances but she faces them with inner STRENGTH and PEACE that she appropriates into her life through faith in Christ.

Consider it pure joy, my Brethren, when you face trials of many kinds
James 1:2

Irene truly exemplifies that verse ....!!!

We’re grateful to Dr. Alan Buchwald, of Santa Cruz, who was an early CHAMPION for Irene during her admission at Dominican Hospital/CHW and was instrumental in getting her admitted to UCSF.

Don Thomas, friend and confidant, also successfully petitioned UCSF to admit Irene after a previous medical team had dismissed her symptoms as kidney failure “only” and recommended discharge from the hospital, advising her to return for treatment as an outpatient three months later.

Two days of testing as an inpatient at UCSF revealed the disturbing and challenging diagnosis: Primary Amyloidosis.

We’re grateful for all of you who prayerfully intercede on Irene’s behalf.

We’re also grateful for our faithful friend and webmaster, Frank Johnson, who caringly attends IreneDias.com.

Yes, Irene’s journey of faith is a colossal MARATHON and the test of endurance is still underway as we await the next epoch to unfold.

Let us run with perseverance the race marked out for us.
Hebrews: 12:1b

Caminando con Fé

Dave

Wednesday, June 10, 2009

Update From Dave

Thanks for checking in...!!!

We just received word from UCSF that Irene’s amyloid values are the following:

* KAPPA LT CHAIN, FREE 51.9
* LAMBDA LT CHAIN, FREE 42.3
Ratio: 1.23

Three months ago the values were the following:

* KAPPA LT CHAIN 44.1
* LAMBDA LT CHAIN 34.9
Ratio: 1.26

While the “raw” values are slightly elevated, the value ratios are within what is being interpreted as remission status. 

From a historical perspective, following are the RAW historical values without the ratio:

June 2007, 652 (stem cell transplant date)

July 2007, 78.5

October 2007, 33.1

February 2008, 56.7

March 2008, 39.4

May 2008, 39.4

December 2008, 37.2

March 2009, 44.1

June 2009, 51.9

Thanks for caring,
Dave

Monday, June 08, 2009

Update From Dave

6.30 p.m…

Quick update...

Irene is resting comfortably this evening after a long and exhausting day which included the colonoscopy early this morning and dialysis all afternoon. 

We hope to have the colonoscopy results within two weeks

The nausea is hovering in the tolerable 5 range on a 1-10 scale.

We are expecting the Amyloid blood test results from UCSF later this week.

Thanks for checking in,
Dave

Sunday, June 07, 2009

Update From Dave

David and his father, Steve Giganti, made an impromptu visit this afternoon. 

David and Steve Giganti

In the U.S. Army, David graduated Number 9 in a class of 600.  He is now training for Green Beret and Special Forces status.  It’s physically and mentally arduous, and only those with an IQ close to genius level even qualify.

David Giganti

Photographed above is David in training.  He is now Airborne Qualified.

Irene, David, and Dave

Irene is in the middle of 24 hour cleansing fast in preparation for the colonoscopy which is scheduled for tomorrow.  She is blessed by David’s faith, energy and zeal for life.

Thanks for caring,

Dave

Saturday, June 06, 2009

Update From Dave

More than 800 people participated and $150,000 was raised at the 2009 CityView Plaza Kidney Walk in San Jose, CA.

2009 Kidney Walk

The morning started with a wonderful SURPRISE when we met Annie Foyle for the first time.

Annie works for the California School for the Blind (CSB), http://www.csb-cde.ca.gov.  Annie introduced herself when we were walking toward the registration area and explained that she volunteered for today’s event after reading about it on Irene’s website.  Wow…!!  It became a tearful moment for Irene when she learned that Annie was the one who facilitated two blood drives through the CSB on her behalf when the need was so critically important.

Thank you, Annie…!!!!!!!  J J

Here’s a related update from March 9, 2008.

It was humbling for Irene to realize once again just how many people have been advocating and praying for her behind the scenes…even those that she hasn’t ever met…!!! 

2009 Kidney Walk

Irene is deeply grateful for all who financially supported the KIDNEY WALK on her behalf!

2009 Kidney Walk

People enjoyed San Jose Police Department’s finest with some members of their envied Equestrian Team.

2009 Kidney Walk

Irene and her sister Jane at the Starting Line before the crowd grew over the next several hours.

2009 Kidney Walk

Kidney Walk ENERGY abounds as people converge on CityView Plaza

2009 Kidney Walk

Irene and Jane pausing near a beautiful fence of Lantana as the “walk about” meandered through the San Jose State University campus .... smile smile

2009 Kidney Walk

Satellite Healthcare, a big sponsor of the Kidney Walk and the organization that Irene routinely “visits” in Watsonville three days a week ....

2009 Kidney Walk

RoadDog Band in the background .... and KBAY, 94.5 FM, were deeply involved in the effort.

2009 Kidney Walk

Jane and Irene victoriously and joyfully crossing the 5k Finish Line ....!!!

Woo Hoo ....!!!!  smile smile smile

Irene’s quote immediately following the journey.... “.... I could do this again ....!”

Caminando con Fé and hoping for a new KIDNEY!

Dave

Thursday, June 04, 2009

Update From Dave

A beautiful day on the Monterey Bay ....

Monterey Bay

We were at UCSF by 9 am this morning where they drew blood for several tests and Irene met her oncologist, Dr. Lloyd Damon.  Dr. Damon strongly believes that Irene remains in remission and that she should continue pursuing the kidney transplant.  He seems almost giddy and elated at Irene’s health and well being, despite the waves of nausea that roll her way.  He wants to see her again in three months.

Monterey Bay

Irene’s holding the nausea at bay .... Ha Ha .... smile

It’s a blue sky and fair weather day on the Monterey Bay .... and we’ll take this kind of report from UCSF any day ....!!

Thanks for caring,

Dave

Wednesday, June 03, 2009

A Call To Prayer

We received a telephone call this evening from my Aunt Carmel Ferreria who lives in Atwater, CA.  She alerted us to an urgent need and request for prayer.

Alec Martinez, who is three years old, has undergone five surgeries facing a malignant brain tumor.  He’s had surgeries in Portland, Oregon and St. Jude’s Hospital, Tennessee.  The last surgery left him a quadriplegic although he’s lucid and communicates with his eyes.  His mind is still very sharp.  His aunt, Ellie Martinez, whom I spoke with this evening, shared that Alec’s is maintaining an amazing attitude and is a “trooper” given all that he’s been confronting.

Today, the medical team delivered this late breaking and horrific news: Alec has been given 2 months to live.

On top of this dire situation, Alec’s mother, Vananh Martinez, is facing a life threatening challenge herself, having been recently diagnosed with ovarian, stomach and colon cancer.

You can read part of their story here:

http://www.caringbridge.org/visit/alexandermartinez/mystory

Please prayerfully intercede for this family and the horrendous ordeal they are facing.

Jesus went throughout Galilee, teaching in their synagogues, preaching the good news of the kingdom, and healing every disease and sickness among the people.
Matthew 4:23

We pray God’s Healing Hand and grace is upon Alec and Vananh, knowing that Jesus is faithful.

Dave & Irene

Tuesday, June 02, 2009

Update From Dave

8.30 p.m.

Irene’s nausea settled down today; it’s hovering around 3 on a 1-10 scale...!!! 

Irene spent most of the afternoon in the Wisteria Garden tending to flowers and spray painted our front porch garden bench BLACK.  It really accents the house...!!!

As we were getting into the spa this evening the weather was spectacular and peculiar: with temperature in the 56 degree range it was sprinkling rain overhead, foggy to the west, and a brilliant, visible sun setting on the horizon....what a combination of micro-climates at one location...!!!

Thanks for checking in...and for caring,
Dave