7 p.m.
It’s MONDAY…the most challenging dialysis day of the week. The nausea is RAGING…and it’s off the 1-10 scale this evening.
Candidly, it’s really difficult to standby and watch this degree of suffering…especially when most people see her on non-dialysis days and wonder what the fuss is all about because she lives above her circumstances, keeps a smile on her face and successfully masks the ongoing waves of nausea. Irene really does have, in many people’s view, an invisible disability, even though she has kidney dialysis 3 days a week.
My virtual friend, Wayne Connell, addresses this chronic matter with his good work at Invisible Disabilities.
Hopefully Irene will continue with her routine…which is to recover by tomorrow morning, after tossing and turning through the night like a fish out of water because of the nausea and insomnia, another symptom of kidney failure.
Our colossal and unrelenting enemy: Primary Amyloidosis…the cause of which Irene has been on this ruthless journey for 4 1/2 + years.
Thanks for caring,
Dave