Radical Departure

Radical Departure

9 p.m. ….

The UCSF team has told us over and over again that if there was a critical path related to Irene’s medical treatment protocol, she’s the patient that took the radical departure …. on almost every occasion.  If there was a prescribed medication noting that it “may cause side effects”, Irene was the patient that did, in fact, have those side effects!! Irene’s medical case is already being used over and over again in the UCSF Resident Program classroom.

The degree of complication related to her journey has baffled many and has been, at times, almost overwhelming.  I say almost, because, in my humble opinion, Irene is a walking miracle …. today.  We are seeing God at work and answering prayer.  We haven’t seen her body completely healed of this disease, yet, but what we do see is that she has overcome significant obstacles and is making slow, but steady progress.  Despite it all, she still maintains an amazing and positive attitude with the same gentle spirit.

Mount Everest in all its glory

For those who have followed the updates closely, you’re aware that I have often used the “Mount Everest” illustration.  To briefly elaborate, I have stated that Irene, with very little cold weather clothing or equipment, had to take this journey to the top of the mountain.  My job, and that of many others, especially the primary medical team, has been to set up base camp for her along the way and support her along the journey.  Today I am willing to say that she has made it to the “Summit of Everest” and is now heading down the snowy, icy and dangerous mountain.  It’s still a treacherous journey, with known and unknown risks along the way, but Irene is hopefully over the most difficult part of the trail.

Here is what we do know after the UCSF outpatient services exam today which also included seeing Dr. Lloyd Damon:

Irene has very high blood pressure but is on medication; it is not unusual for abnormal kidney function to cause high blood pressure
Chronic nausea is still an ongoing issue but hopefully it will

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Well Wishes from Laura Gschwend

Dave,
You should write a book..love the updates and wisdom you are sharing. They inspire so many, including us!

Irene,
We love you and each day you are prayed for…we are so proud of you and stand committed with you for the long haul. May each new day bring you closer to full and complete healing. We long to see you again.

Love,
Dave and Larua

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Psalm 102

Psalm 102

8 p.m. ….

I perceive many astonishing and intriguing similarities between the psalmist’s prayer and Irene’s experience as I read several verses of Psalm 102, from The Living Bible version.  Simply read through it slowly; my observations follow.

1 Lord, hear my prayer!  Listen to my plea!

2 Don’t turn away from me in this time of my distress.  Bend down your ear and give me speedy answers, 3 for my days disappear like smoke.  My health is broken and my heart is sick; it is trampled like grass and is withered.  4 My food is tasteless, and I have lost my appetite.  5 I am reduced to skin and bones …. 6 I lie awake, lonely as a solitary sparrow on the roof.

11 My life is passing swiftly as the evening shadows.  I am withering like grass ….

17 He will listen to the prayers of the destitute, for he is never too busy to heed their requests.  18 I am recording this so that future generations will also praise the Lord for all that he has done.

23 He has cut me down middle life, shortening my days.  24 But I cried out to him, “O God, you live forever and forever! Don’t let me die half through my years.  25 In ages past you laid the foundations with your hands!  26 They shall perish, but you go on forever.

28 But our families will continue; generation after generation will be preserved by your protection.”

Can you, like me, see Irene’s “fingerprints” all over these verses?  Could it be that the psalmist was also afflicted with Amyloidosis or ESRD? Obviously, without empirical evidence, here is how I humbly interpret the above:

Verses 1,2,3: Irene petitions the living God as she faces Primary Amyloidosis

Verse 4: Because of the chemotherapy, nausea and ESRD, Irene’s food is utterly tasteless (there’s even a metallic taste to it)

Verse 5/11: Irene has lost 28 pounds from the disease and treatment

Verse 6: Irene is plagued with nightly insomnia; a direct side effect of ESRD

Verses 17, 18: Irene continues to petition the Lord for His healing touch and has full confidence in him, trusting

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