In many ways the diagnosis of Primary Amyloidosis is a medical mystery which is why this email broadcast in the Yahoo Amyloidosis Support Groups is especially interesting ….
Hello Everyone!
I just found out that our Mystery Diagnosis episode on amyloidosis will air on Monday, April 7 at 10:00 p.m., EST! The program is shown on the Discovery Health Channel (not to be confused with the Discovery Channel). The episode will describe my personal experience with the disease, from diagnosis to treatment.
Hopefully this program will serve two purposes. First, we hope to educate those in the medical community less familiar with this rare and serious disease, and enable them to correctly diagnose their patients more quickly, so that optimal treatment can be provided. And most importantly, we hope that viewers experiencing unresolved organ impairment will have the information they need to obtain a correct diagnosis and proper treatment.
So spread the word to everyone you know, including your medical teams. I hope the show meets our high expectations!
Jenifer Gershman
Irene woke up with a smile this morning and aggressively pursued the day. Shirley Churchill worked with her this afternoon for 2+ on physiology techniques designed to wake up the kidneys. Irene prepared a delicious salmon dinner and worked in the yard afterward. The nausea remained at a low roar throughout most of the day. Despite yesterday’s development, her trust and confidence in God remains at an all time high!! Thank you for the many expressions of care and prayer support!!
Mark your calendar for the Discovery Health Channel on Monday, April 7, 10 pm EST (that’s 7 pm CA time) for the Mystery Diagnosis Amyloidosis episode.
Perhaps it will shed some light on this medical mystery.
Caminando con Fé
Dave
